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Carly resides in Vancouver, Canada and is an advocate for
all things Ostomy and Cancer.
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Continuously misdiagnosed over a years time, dismissed for what they called ruptured cysts. I waited months to see a gynaecologist. The Dr performed a biopsy that day and stage 3 Vulvar cancer confirmed 4 days later. It felt like I was sitting on a marble, then a golf ball and by the time I was diagnosed an orange. What I felt was a tumour.
A detailed blog explains my treatment plan in 2014 & 2015. The struggles of bowel control and anxiety that came along with it. When I got my colostomy I regained control of my bowels, truly a gift.
Mid 2015 I was told the cancer was gone. Unfortunately come 2017 my cancer was back and surgery the only option.
Feb 16, 2018 I underwent an 8.5 hour surgery called Pelvic Exenteration. As a result of this surgery I was given a permanent colostomy, vulvar reconstruction, hysterectomy and a proctectomy otherwise known as Barbie butt (since the Barbie doll has no butt hole).
Life hasn't been kind to me since 2014. In saying that, it has shown me the way to advocate for myself and others. To help end stigma about below the belt cancers and ostomy life.
I am #ostomyproud
Jessie: Loop Ileostomy as a result of perianal Crohn's disease.
Lives in Atlanta, GA, USA
My cat is named Marnie Monica
after my grans.
The name I would have
given a daughter.
I say pouch more often than bag.
Not all pouches are
brown and tacky!
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